ASCO 2019 : Metaplastic Breast Cancer Global Alliance

Chicago, IL : May 31st– June 4th 2019

Meeting for American Society of Clinical Oncology

Chicago, IL : May 31st– June 4 2019

The Metaplastic Breast Cancer Global Alliance was excited to qualify for an ASCO-Sponsored Patient Advocacy Booth this past May 31st through June 4th, 2019.   This annual meeting of the American Society of Clinical Oncology provides nonprofit patient organizations the opportunity to meet, interact and exchange information with approximately 40,000 meeting attendees from all over the globe.

Florida -- 18

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South Carolina -- 7

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Georgia -- 8

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Alabama -- 3

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North Carolina -- 1

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Tennessee -- 6

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Mexico -- 1

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Texas--24

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New Mexico -- 3

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Arizona -- 7

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Utah -- 1

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California -- 24

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Oregon -- 3

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Montana -- 1

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South Dakota -- 1

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Minnesota -- 4

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Iowa -- 2

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Illinois -- 19

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Wisconsin -- 5

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Michigan - 12

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New York -- 12

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New Jersey -- 6

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Pennsylvania -- 14

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Maryland -- 4

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Washington State -- 3

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Virginia -- 9

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South Africa -- 1

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Costa Rica --

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Romania --

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Germany -- 3

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Netherlands -- 1

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New Hampshire --

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Kentucky -- 7

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Indiana -- 6

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Greece - 1

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Poland - 1

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Ohio-- 6

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Missouri--7

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Colorado--5

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Nebraska--2

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Curacao--1

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Louisiana--6

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Spain--1

Connecticut -- 2

Hawaii-- 1

West Virginia-- 1

Maine-- 1

Massachusetts--1

Puerto Rico--1

Mississippi--1

Kansas--2

Philippines--1

Ontario Canada-- 12

Manitoba Canada-- 3

Alberta Canada-- 3

Nova Scotia Canada-- 1

Western Australia--5

Queensland Australia--8

New South Wales Australia--3

Victoria Australia--5

New Zealand--6

Malta--

India-- 3

Scotland, United Kingdom -- 1

England, United Kingdom -- 18

Republic of Ireland -- 1

Alaska -- 1

India -- 3

Singapore -- 1

Turkey -- 1

Arkansas--

U.S. Virgin Islands-- 1

Nevada-- 1

Wyoming--1

Nova Scotia--1

We were able to share our Diagnosed Member Map at our Booth from a LapTop.

Members, Family and Friends

We were very fortunate to have ten diagnosed members, family and friends attend this valuable conference and assist our busy booth. We were thrilled with the welcome we received from doctors all over the world who were surprised to see a patient advocacy group representing MpBC! We shared information with many doctors and even made a short video with a doctor from Brazil so that she could provide better support to her patients!

“Raising Global Awareness and Supporting Research for Metaplastic Breast Cancer”

Our handouts:

Continued Need for Research

The week was capped off by an early-morning session on Monday the last day of the conference, delivered by Dr. Stacey Moulder, that highlighted Metaplastic Breast Cancer and the need for research.

Take Home Points and Conclusions

ASCO is the largest venue for sharing cutting edge scientific and educational developments in oncology and we were very proud of all our efforts and how we represented our rare community.

Meeting with Dr. Moulder at our Booth

Other Patient Advocates We Met

Ian Still Sporting Our Shirt!

Best Memories and Takeaways from ASCO 2019!

Susan D. Oran– “For me, the highlight was hearing Metaplastic Breast Cancer discussed in a session attended by hundreds of doctors at 8am and meeting with Dr. Moulder again.  Eating dip-n-dots with my oncologist Dr. Michael Nissenblatt and meeting all of you wonderful people and seeing how we were able to ban together towards our common goals so easily!”

Nancy McCormack Buschener–  “Meeting all of you and your amazing doctors.  I learned so much! Oh and the cake building!”

Sue McCaldon–  “For me it was meeting you all and having the opportunity to go into sessions to learn so much.  Also, seeing my doctor and finding my drug trial poster and talking to the research people in the drug company.”

Dr. Janku stopped by to say Hi!

Jim Harvey Sy– “Best part was meeting you guys and learning that there is so much out there focused on finding a cure for cancer”

Casie Friedrich- “For me it was seeing oncologists and other oncology professionals from all around the world looking to us for information to better help their patients! And the Lattes with your face on them!”

Stephanie Oran– “Hearing Dr. Moulder say that social media has provided a way for doctors to meet patient advocacy groups (like us!)  Oh and all the free snacks!”

Laura Houmes–  “My first takeaway is WOW!  I am completely exhausted but was worth all our combined efforts.  I can’t say there was any “best” part of our ASCO gathering. The whole event was a blessing to me and more than I could have imagined.  Metaplastic breast cancer brought us all together and we all are trying to make a difference. I believe we made all who have donated to our nonprofit proud!” 

Finally, just some images from our time at a local historical, 1800s haunted AirBnB!